First of all, thanks to all of the Rett moms who continue to make comments to this blog. You will never know how encouraging and helpful your words and your own blogs are to me and our family. You are awesome and really inspire me to do more for our Andrew. What a blessing to have your support.
For a long time I have thought that Andrew might never be potty trained and that at the age of 25 I would still be changing his diapers, yuck! When we were in Vegas I decided to get him an M&M candy dispenser for the bathroom to work on potty training. I have sat him on the potty off and on since he was 18 months with little to no luck. I really decided this weekend to aggressively attack the issue and sit him on the potty every hour and rewarding him with candy when he did go. He loved it! On Monday he went all 6 times even when he didn't need to go. He would look at the candy dispenser, look back at me, and then look down and pee-peed. YEA!!!!! He got so excited looking at the potty and candy machine that he fell and hit his head on the tub while we were trying to brush teeth. Now that is excited. So yesterday I decided no more diapers and to just wear pull ups during the day hours. The problem occurred when his attendant came over and suggested that he doesn't do it with her and he has no way to communicate that need to go. I got soooo frustrated and told her nicely that if we get him on a routine scheduled potty time he will get his body adjusted to it and will go. She blew me off and put him in a diaper. You can imagine my frustration with this. He is a smart boy. He may have Rett Syndrome but he is in there and he totally understands what we are asking him to do. He went everytime within 2 minutes of sitting him on the pot. When you are on a roll with something like this you don't want to lose momentum and I really felt like we were losing it yesterday. So, back to square one on the job issue. I am now thinking of going back down to 2 days a week so I can give him more of what he needs. If she doesn't believe in him on this then she probably isn't trying to challenge or help him in other areas including the weight gain. ARG!!!!
Rett Syndrome. One year Post Surgery
5 months ago