I didn't want to post about this but I know I need to. We had an ARD on Friday and Andrew's one on one aide was removed from the picture. The special ed coordinator made a lot of great arguments as to why he does not need one. I don't want him to have an aide unless necessary and I didn't and still don't know what to feel. I discussed our frustration with a lack of progress being made in school and they suggested summer school as well as a teacher conference regarding goals. I left the ARD crying and feeling like somehow I have let Andrew down, like I didn't try hard enough for him. Ofcourse I could call an ARD meeting anytime and argue with them, I just struggle with knowing if he really needs the assistant. They assured me the ratio in the class will still be 1 teacher or assistant to 2 children and that does make me feel good. We are leaving at 4 tommorrow morning to head for Andrew's aptmt at the Blue Bird Rett Clinic in Houston. We will be their for 2 days for aptmts with neurology, GI, and dentist. Maybe they can help me see things clearer and I just pray that they will be able to help us as I sometimes feel like all the aptmts don't tell us much. As for the job situation, my current position is going to counter offer, so I still don't know what to think, regardless of how much either is willing to pay me. Money isn't everything and I just want Andrew to be ok, which I know he will. Please pray for peace in both situations and for some rest, lately I am feeling a little stressed. I will try to post more when I get to Dallas for my training, and thank you Dad for taking Andrew all the way back to San Antonio, you are the best!
We are a family of five living in San Antonio, TX. Our son Andrew was diagnosed at 20 months with Autism. We knew that something was still not right about his diagnosis. After many doctors appointments with specialists and geneticists he received a diagnosis of Rett Sydnrome in November 2008. He continues to struggle daily with communication, swallowing, using his hands and with breathing. We really feel blessed with every day we are given and we are learning to love and live with life's many challenges.