Some of you may know that Andrew has had a one on one aide at school since he started. It is not something that we initially asked for but the school offered this at his first ARD meeting and so we happily agreed to it. This was to be provided to him for the first 30 school days, which ends tommorrow. So, tommorrow we have yet another ARD meeting, which makes it 3 meetings with the school district in a matter of 2 months of attending school. I sit here tonight feeling really anxious, and stressed about the meeting. The last two meetings went ok but this one I know is not going to go so well. I have tried not to think about this over the holidays because I knew it would make me feel this way and I would get stuck on thinking about. The school distrcit has a hiring freeze right now and I am aware that they are wanting to take away his aide. In some ways I feel like maybe he doesn't need that person as bad as another child might, maybe a child that was in a wheel chair. They also have one teacher, 2 aides and 7 children in his class for only 3 hours every morning. Does he really require an extra aide all to himself? Then I start to think about all the help he does need- help with toileting, help with walking down the hall, hand over hand assistance for most all activities, help with feeding. I wish someone could tell me how to feel about this. In some way I feel that if I don't fight for his one on one aide that I am letting him down and I have given up trying to help him. His ABA therapists say he has regressed on his goals since starting school and I know it is because the instruction he receives is not as intensive as our home program. There are so many things that I would want to change about the school situation. I also know that having worked as a speech therapist in the schools that when you complain too much no one wants to help your child. I wish that wasn't the case. Please pray that we keep our cool tommorrow and the best outcome will be given for Andrew. Oh- and pray for our sitter as she is stuck in Mexico and we have no one to watch Andrew at the moment.
We are a family of five living in San Antonio, TX. Our son Andrew was diagnosed at 20 months with Autism. We knew that something was still not right about his diagnosis. After many doctors appointments with specialists and geneticists he received a diagnosis of Rett Sydnrome in November 2008. He continues to struggle daily with communication, swallowing, using his hands and with breathing. We really feel blessed with every day we are given and we are learning to love and live with life's many challenges.