I am a little frustrated today. Andrew's nanny let us know a couple of weeks ago that she could no longer watch him. She was really great with him, so patient and understanding. There were so many days that we would come home and find her out on a walk with him or sitting and reading him books. I was pretty sad about this but understand. An agency here in town has been providing an attendant Monday through Thursday so I could work after he got home from school. The agency found somone to cover these hours so he would have a consistent caregiver. She started on Monday and already she has called in sick. I know we all have sick days but I don't have a good feeling about this and something tells me that this one isn't going to work out. I wish more than anything that we didn't have to deal with the agency and that we had a family member, or grandma that could watch him. He really isn't a difficult kiddo and is soo super sweet loving and funny. Lately he has been waking us up at 2 or 3 in the morning crying and screaming. I'm not sure if this is a seizure, nightmare, or if he just woke up and realized we weren't there. So every night for the past week I have gotten up and put him in our bed, and within 5 minutes he is asleep again. It sure makes it hard for both of us to get back to sleep though and I'm not sure if this is a problem behavior. He has always slept in his bed from 4 weeks old. I wonder if neurotypical three year olds do this too. Anyone???
We are a family of five living in San Antonio, TX. Our son Andrew was diagnosed at 20 months with Autism. We knew that something was still not right about his diagnosis. After many doctors appointments with specialists and geneticists he received a diagnosis of Rett Sydnrome in November 2008. He continues to struggle daily with communication, swallowing, using his hands and with breathing. We really feel blessed with every day we are given and we are learning to love and live with life's many challenges.